During and After the Diagnosis of a Capital Letter Syndrome

This week on the podcast, Lori and I talk about diagnosing a capital letter syndrome. It’s pretty scary territory. Sometimes there is an invisible stigma attached to stepping out and finding some help. Not sure why, maybe we just feel guilty. Mom guilt is real. Even if you adopted, you know you aren’t immune to Mom guilt. We Moms have some weird knack for feeling guilty that things that we didn’t have anything to do with. Raise your hand if you agree.

Episode 41

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Another issue we parents deal with when searching for answers for our kids’ struggles is the “Just do this…” people. You know what I mean, those people who have all the answers for your child based on spending sixty seconds with them. It’s irritating. Right? Our advice, don’t share with them. Limit your time with those “Just do this..” people as much as possible. Don’t take it personally. Just move on.

During and after the diagnosis

*this portion was written by Rachel Eubanks

Be prepared that it will hurt even if you are expecting it.  You will take it personally and you have to be ready to push back against that.  You can’t effectively advocate for your child if you are too busy attacking yourself.

Act professionally at the appointment, keep it together (especially if your child is with you).  This isn’t a death sentence, it’s just a tool for you to help your child.  It’s okay to fall apart later, but keep it together at first.

Talk about it with a few people you trust.  Yes, your child’s diagnosis is their story and you shouldn’t broadcast it without their permission, but it’s your story too.  You know what friends and family who will keep your confidence and not judge, talk to them.

Your child isn’t sick or weird, they are just missing a piece to their puzzle and as their parent it’s your job to find it.

Do any of your children have a capital letter syndrome? Share your story with us! We’d love to hear it.

Do you suspect that one of your kiddos has a capital letter syndrome? Did this episode help? Let us know!

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